I was born with a heart defect. Atrial septal defect. Hole in my heart. So from the day I was born, I was a heart patient. When I was four, I had open heart surgery to repair it. But I was still under a cardiologist’s care for a good part of my childhood. Then I was released. Released and told I could do anything. No restrictions. And I did a lot of stuff. But I had a scar from that surgery that reminded me that indeed I had been a heart patient even if I was now just a member of the “mended heart club”.
And then when I was fourteen, I developed an “atrial flutter” and so again I was a “heart patient”. But that got taken care of and soon enough I was off the medication and life went on.
But then when I was 28 (almost 11 years ago now), I had a heart attack. Unexplained. Probably a blood clot. A “fluke” one of my doctors said. And again I was a “heart patient”. And then there were more atrial flutters. And there were questions about whether or not I should get pregnant. And on and on. But through it all, for the last 11 years, I’ve been a heart patient.
Last year I hit the 10 year anniversary of my heart attack. And it’s been long enough, that no one considers it an issue anymore. Not even the insurance companies. And then my cardiologist decided that we should do something about these atrial flutters I kept getting. Something permanent. So I had an ablation. And it worked. It’s been almost a year since I had the procedure and my heart has been working perfectly. No flutters. No nothing. Just the occasional palpitation that we all get, but most of us don’t notice because most of us are not so very in tune with every beat of their hearts like I am. Because, you know, I’m a “heart patient”. And in a year, I’ll go back and most likely, they’ll release me and I’ll be done. I won’t have to go back anymore. No more checkups. Nothing. I won’t be a “heart patient” anymore. And well, I’m not sure I know exactly how to deal with that.
Being a heart patient has been part of who I am for so long, I’m not sure I know how to not be one. I’m not sure I know how to not think of that as part of my identity. The thought of it kind of freaks me out. How do you let go of something that you’ve taken ownership or for so long? How do I not be a heart patient? And why am I having such a hard time with this? Shouldn’t I be thrilled? Shouldn’t I rejoice? Shouldn’t I be ecstatic? Why do I feel like I’m losing something? Something that makes me who I am?
The scar that I got when I had open heart surgery when I four years old is still there. It’s part of my identity. It’s part of the very fiber of my being. I’ve had to live with it for 35 years. I’ve had to explain it to people. I’ve had to put up with it being there when I wear a low cut top. I’ve had to wonder if it made me less attractive. I’ve gotten used to it. I’ve accepted it. It’s part of me. And so has being a heart patient been. So has worrying about every twinge and every pain. Will I ever be able to accept that I don’t have to do that anymore?
When I had my heart attack, it rocked my world. It made me realize I was not immortal. That some day I would die. And I guess in some ways, ever since that day, I’ve worried about that. I’ve thought about that. I’ve been concerned. And, of course, someday I will die. We all do that. But maybe (hopefully) not anytime soon. And maybe not because my heart isn’t working the way it should.
It’s a lot to grasp. I guess I sort of figured I’d always be a “heart patient”. And now I have to get used to the idea that maybe, just maybe, I won’t.